ERDERA Learning Portal

The ERDERA Learning Portal brings together courses and resources for researchers, clinicians, patient representatives, policymakers, and industry professionals, suited to different levels of knowledge. Some of the training and resources presented are developed or endorsed by ERDERA, while others are provided by external organisations and are not ERDERA training. By supporting skills development, encouraging collaboration, and facilitating knowledge exchange, ERDERA helps connect people and expertise across the rare disease research community.

TYPE

Course type

LEVEL

course level

STATUS

course status

LENGTH

Course lenght

COST

Course Cost

CERTIFICATION

Course certification

CATEGORY

course category

TAG CLOUD

Select some options
Course Tag

Contact the Training & Education Work Stream. Please note that you will leave the ERDERA environment

Contact
Multi Format

Open Academy x ERDERA Training on Data, Ethics and AI

Hybrid Open Academy x ERDERA training equipping rare disease advocates and early‑career researchers to navigate health data, ethics and AI in European rare disease research.
multi-format
•
intermediate
  • 2027   |    AI technologies   |    Data Collection and Sharing   |    Data Stewardship   |    Early Career Researchers   |    ERDERA   |    Ethics   |    EURORDIS–Rare Diseases Europe   |    Open Academy   |    Patient Advocacy   |    Regulatory
In Person

Open Academy x ERDERA School on Medicines Research and Development

The School on Medicines Research & Development is part of the Open Academy Schools x ERDERA and is a 4-day face-to-face training, held in June in Barcelona.
in-person training
•
intermediate
  • 2027   |    Data Stewardship   |    ERDERA   |    EURORDIS–Rare Diseases Europe   |    Medicines Research and Development   |    Open Academy
In Person

Open Academy x ERDERA School on Scientific Innovation & Translational Research

The Open Academy School on Scientific Innovation & Translational Research is part of the Open Academy Schools x ERDERA and consists of a 4-day in-person training in Barcelona.
in-person training
•
intermediate
  • 2027   |    ERDERA   |    EURORDIS–Rare Diseases Europe   |    Innovation   |    Open Academy   |    Translational Research

Closed training

Materials available

Situating Ethics in the Research Continuum | ERDERA Ethics & Regulatory Webinar Series

webinar
•
basic
  • AI technologies   |    ATMPs (Advanced Therapy Medicinal Products)   |    Ethics

Closed training

Materials available

ERDERA diagnostic research workstream webinar series – An overview (session 1)

The session introduces the workstream’s activities in data sharing, systematic diagnostic reanalysis, advanced diagnostic pipelines, and genomic and multi-omics innovation.
webinar
•
intermediate
  • Diagnostics   |    Genomics   |    Multi-omics

Closed training

Materials available

Enhancing Patient-Centricity in Rare Disease Clinical Trials

Don’t miss this opportunity to share your expertise and help shape the future of clinical research in ultra-rare conditions!
webinar
•
intermediate
  • Clinical Trials   |    Patient Advocacy   |    Patient engagement   |    Patient Public Involvement and Engagement (PPIE)   |    Ultra-rare diseases

Closed training

Materials available

Single arm, RCT or something in between – how to enrich clinical trial design and analysis in rare diseases

Don’t miss this opportunity to share your perspective and help drive innovation in rare disease trials. Together, we can accelerate patient access and improve outcomes worldwide.
webinar
•
advanced
  • Clinical Trials   |    Health Technology Assessment (HTA)   |    Real World Evidence   |    Real-World Data (RWD)   |    Regulatory   |    Single‑Arm Trials (SATs)   |    Ultra-rare diseases

Closed training

Materials available

Evidence Assessment Framework. The need for a mindset shift among developers, regulators and HTAs

Explore why current evidence frameworks fall short in rare diseases—and discover how the RealiseD consortium is driving scientific and operational solutions to accelerate patient access and reshape evidence generation.
webinar
•
intermediate
  • Clinical Trials   |    Health Technology Assessment (HTA)   |    Real World Evidence   |    Regulatory

ERDERA Search