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GAM 2026 Badge

ERDERA General Assembly sets priorities for an integrated and delivery-focused third year

ERDERA’s third General Assembly brought partners together in Coimbra to review its second year, strengthen connections across the partnership and align priorities for a more integrated and delivery-focused third year.
ERDERA 2026 Open Session

From individual cases to new treatment pathways: ERDERA Open Session focuses on ultra-rare diseases

ERDERA marked the close of its second year with an Open Session on ultra-rare diseases, bringing together European, regulatory and scientific perspectives on how innovation can reach patients.
ERDERA JTc 2027

ERDERA pre-announces 2027 Joint Transnational Call on recently identified rare diseases

The Joint Transnational Call is expected to open on 1 December 2026, with an information webinar planned for 14 December.
Training online

Information Webinar – ERDERA Joint Transnational Call 2027

December 14 @ 3:00 pm - 4:00 pm
This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.
Cover of the 16-country rare disease policy assessment, October 2026.

Reckoning With the Rare Disease Landscape. A 16 Country Policy Landscape Assessment across the Life Course.

The assessment compares diagnosis, treatment access and national governance across 16 countries, examining gaps in rare disease support throughout the life course.
ERDERA JTC 2027 pre-announcement cover

ERDERA 2027 Joint Transnational Call – Pre-announcement

The document outlines the Call's 2027 proposed research scope, eligibility criteria, consortium requirements and preliminary application timetable for multinational collaborations on recently identified rare diseases.
A European Blueprint for Rare Diseases

A European Blueprint for Rare Diseases: Towards an EU Action Plan for Rare Diseases

The European Blueprint sets out how Europe can build on initiatives such as ERDERA to turn existing expertise into a more coordinated future for rare diseases.
ERDERA Ethics & Regulatory webinar series: The Role of Ethics in ATMP Research and Development

The Role of Ethics in ATMP Research and Development

November 2 @ 1:00 pm - 2:00 pm
ERDERA Ethics & Regulatory Webinar Series
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The FAIR principles: making rare disease data work better

Responsible data management can help accelerate research and improve collaboration in rare diseases.
ERDERA Knowledge Exchange Meeting

ERDERA Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases

November 25 - November 26
Discover practical pathways to repurpose medicines for rare diseases, exchange experiences and best practices between underrepresented and high-performing countries, and build new partnerships at the ERDERA Knowledge Exchange Meeting in Riga on 25-26 November.
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