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Event Report: 2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases

The 2nd International Conference on Clinical Research Networks (CRNs), organised by European Rare Diseases Research Alliance (ERDERA), Rare Disease International (RDI) and International Rare Diseases Research Consortium (IRDiRC), brought together the global rare disease community to advance innovative clinical research solutions, with a special focus on low- and middle-income countries (LMICs).

publication

International Conference on CRNs

ERDERA International Alignment

A European Blueprint for Rare Diseases: Towards an EU Action Plan for Rare Diseases

16 October 2026

The European Blueprint sets out how Europe can build on initiatives such as ERDERA to turn existing expertise into a more coordinated future for rare diseases.