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The multicentre observational study analysed 661 assessments from 219 people with SCA27B to examine disease progression, clinical outcome metrics and demographic or genetic modifiers.
Call text draft setting out rules, eligibility and staged application process for the ERDERA Clinical Trial Call 2026.
This 2026 country report outlines the policy, research, care and support landscape for rare diseases in Poland.
ERDERA launches Clinical Trial Call 2026 to advance early‑phase clinical trials for rare diseases
The 2nd International Conference on Clinical Research Networks (CRNs), organised by European Rare Diseases Research Alliance (ERDERA), Rare Disease International (RDI) and International Rare Diseases Research Consortium (IRDiRC), brought together the global rare disease community to advance innovative clinical research solutions, with a special focus on low- and middle-income countries (LMICs).
The European Rare Diseases Research Alliance (ERDERA), together with the European Reference Networks (ERNs), provides the missing operational layer required to implement the European Biotech Act across the full innovation pathway —from discovery to patient access.