State of the Art 2026 RD Report: Poland

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This 2026 country report outlines the policy, research, care and support landscape for rare diseases in Poland.

This report gives an overview of rare disease activities in Poland in 2026, including the national action plan, research and funding, registration and biobanking, organisation of care, newborn screening, diagnostics, patient organisations, information resources, training and orphan medicinal products.

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Held in Riga on 9–10 June, the workshop brought National Mirror Group experts, researchers, clinicians and policymakers together to exchange practical lessons on how national rare disease registries can better support research and alignment across countries.
ERDERA (the European Rare Diseases Research Alliance) has opened its Clinical Trial Call to support multinational early-phase clinical trials in rare diseases. The call will fund studies designed to generate robust clinical evidence, strengthen regulatory readiness and make rare disease trials more feasible across countries.
Call text draft setting out rules, eligibility and staged application process for the ERDERA Clinical Trial Call 2026.