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Your Tag: National Mirror Group (NMG)

NMG workshop 2026

ERDERA National Mirror Groups workshop: Creating, evolving and utilising national registries to advance rare disease research

Held in Riga on 9–10 June, the workshop brought National Mirror Group experts, researchers, clinicians and policymakers together to exchange practical lessons on how national rare disease registries can better support research and alignment across countries.
Radka Kaneva and Petia Stratieva, Sofia, March 2026

“National Mirror Groups are essentially a bridge — bringing European developments, standards and opportunities to clinicians and researchers.”

ERDERA interviews Prof. Radka Kaneva and Dr Petia Stratieva, two leading members of Bulgaria’s National Mirror Group (NMG), to explore how the country is working to align its rare disease ecosystem with European developments.
NMGs Sofia

Countries step up joint approaches to rare disease research at first in person ERDERA National Alignment Board meeting

Taking place at a pivotal moment – with the European Rare Disease Plan expected to move forward significantly during 2026 – the meetings brought together National Mirror Group (NMG) representatives from Europe and beyond, alongside European Commission stakeholders, IRDiRC and international partners.
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The Health Research Podcast – Ep 6: Rare Disease Research

YT thumbanil ERDERA (3)

Victoria Hedley explains the role of National Mirror Groups in the rare disease research ecosystem

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Joining the Dots: EURORDIS’ role in ERDERA and the reshaping of rare disease research

EURORDIS champions patient-centred innovation in rare disease research
Emine Eylul Taksin

“By supporting more joint projects and research partnerships, Türkiye’s National Mirror Group can help ensure that the country’s scientific strengths translate into tangible benefits for patients”

ERDERA interviews Emine Eylül Taşkın, Project Manager at ERDERA and at the İzmir Biomedicine and Genome Center (IBG)
webinar

ERDERA workshop to widen participation of underrepresented countries in rare disease research

20–21 November — A practical ERDERA workshop to connect researchers, clinicians, patients and funders from underrepresented countries to strengthen capacity for inclusive rare disease research.
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Networking of underrepresented countries for the enhancement of rare disease research

November 20 @ 8:00 am - November 21 @ 1:00 pm
Presenting new evidence from an ERDERA survey across more than 30 countries and co‑create practical solutions to improve inclusion, networking and capacity development.
World Orphan Drug Congress

ERDERA, RealiseD and INVENTS to lead workshop at WODC Europe 2025

Less than a month to the World Orphan Drug Congress Europe.
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