Your Tag: National Mirror Group (NMG)

How National Mirror Groups strengthen rare disease research and policy alignment in Europe

How National Mirror Groups strengthen rare disease research and policy alignment in Europe

By connecting national priorities with European initiatives, NMGs support stronger coordination, knowledge exchange and alignment across the rare disease ecosystem.
State of the art rare disease country reports ERDERA 2025

State of the art 2025 rare disease country report: Sweden

This 2025 country report outlines the policy, research, care and support landscape for rare diseases in Sweden.
State of the art rare disease country reports ERDERA

State of the art 2026 rare disease country report: Poland

This 2026 country report outlines the policy, research, care and support landscape for rare diseases in Poland.
NMG workshop 2026

ERDERA National Mirror Groups workshop: Creating, evolving and utilising national registries to advance rare disease research

Held in Riga on 9–10 June, the workshop brought National Mirror Group experts, researchers, clinicians and policymakers together to exchange practical lessons on how national rare disease registries can better support research and alignment across countries.
Radka Kaneva and Petia Stratieva, Sofia, March 2026

“National Mirror Groups are essentially a bridge — bringing European developments, standards and opportunities to clinicians and researchers.”

ERDERA interviews Prof. Radka Kaneva and Dr Petia Stratieva, two leading members of Bulgaria’s National Mirror Group (NMG), to explore how the country is working to align its rare disease ecosystem with European developments.
NMGs Sofia

Countries step up joint approaches to rare disease research at first in person ERDERA National Alignment Board meeting

Taking place at a pivotal moment – with the European Rare Disease Plan expected to move forward significantly during 2026 – the meetings brought together National Mirror Group (NMG) representatives from Europe and beyond, alongside European Commission stakeholders, IRDiRC and international partners.
erdera national mirror groups

National Mirror Groups (NMGs)

National Mirror Groups bring national needs and examples of good practice into ERDERA’s annual work plans, share ERDERA outputs with organisations and communities at country level, and enable direct peer-to-peer learning between countries.​
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The Health Research Podcast – Ep 6: Rare Disease Research

YT thumbanil ERDERA (3)

Victoria Hedley explains the role of National Mirror Groups in the rare disease research ecosystem

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Joining the Dots: EURORDIS’ role in ERDERA and the reshaping of rare disease research

EURORDIS champions patient-centred innovation in rare disease research
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