Mar
10
2026

The Health Research Podcast – Ep 6: Rare Disease Research

blank

This episode features Dr Avril Kennan Chief Executive of Health Research Charities Ireland, Dr Gráinne Gorman Chief Executive of the Health Research Board, and Gavin Lawler, HRB Programme Manager and co-ordinator of the Irish National Mirror Group on Rare Diseases.

News & Updates

You might also be interested in

Feedback is open until 14 July 2026, giving stakeholders an early opportunity to comment during the preparation of a likely legislative proposal for a Council regulation.
At the European Human Genetics Conference 2026 in Gothenburg, ERDERA’s Diagnostic Research Workstream reviewed progress, highlighted early results and used a major European genetics meeting to examine how advances in data sharing and genomic analysis may strengthen rare disease diagnosis across countries.
Boston, 9–11 June 2026: ERDERA's Scientific Coordinator joined the World Orphan Drug Congress USA to set out how stronger clinical research networks can make rare disease trials more feasible across sites and borders.
The 2nd International Conference on Clinical Research Networks (CRNs), organised by European Rare Diseases Research Alliance (ERDERA), Rare Disease International (RDI) and International Rare Diseases Research Consortium (IRDiRC), brought together the global rare disease community to advance innovative clinical research solutions, with a special focus on low- and middle-income countries (LMICs).