Your Category: International Alignment

GAM 2026 Badge

ERDERA General Assembly sets priorities for an integrated and delivery-focused third year

ERDERA’s third General Assembly brought partners together in Coimbra to review its second year, strengthen connections across the partnership and align priorities for a more integrated and delivery-focused third year.
ERDERA 2026 Open Session

From individual cases to new treatment pathways: ERDERA Open Session focuses on ultra-rare diseases

ERDERA marked the close of its second year with an Open Session on ultra-rare diseases, bringing together European, regulatory and scientific perspectives on how innovation can reach patients.
Cover of the 16-country rare disease policy assessment, October 2026.

Reckoning With the Rare Disease Landscape. A 16 Country Policy Landscape Assessment across the Life Course.

The assessment compares diagnosis, treatment access and national governance across 16 countries, examining gaps in rare disease support throughout the life course.
State of the art rare disease country reports ERDERA 2025

State of the art 2025 rare disease country report: Cyprus

This 2025 country report outlines the policy, research, care and support landscape for rare diseases in Cyprus.
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Leveraging precompetitive collaborations for rare diseases

The editorial examines how shared frameworks, data standards, infrastructure and governance can help stakeholders address common barriers in rare disease research and medicine development.
Engaging children, adolescents and young adults living with rare diseases as research partners: practical considerations for meaningful involvement

Engaging children, adolescents and young adults living with rare diseases as research partners: practical considerations for meaningful involvement

An International Rare Diseases Research Consortium (IRDiRC) working group developed practical guidance and a checklist for involving young people meaningfully in rare disease research.
ERDERA Knowledge Exchange Meeting

ERDERA Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases

November 25 - November 26
Discover practical pathways to repurpose medicines for rare diseases, exchange experiences and best practices between underrepresented and high-performing countries, and build new partnerships at the ERDERA Knowledge Exchange Meeting in Riga on 25-26 November.
ERDERA clinical trial call

ERDERA Clinical Trial Call – Annex IV. Guidelines for Canadian Applicants

This annex explains the specific eligibility, sponsorship, funding and application requirements for Canadian applicants in the ERDERA Clinical Trial Call.
ERDERA clinical trial call

ERDERA Clinical Trial Call – Call Text

Call text draft setting out rules, eligibility and staged application process for the ERDERA Clinical Trial Call 2026.
How National Mirror Groups strengthen rare disease research and policy alignment in Europe

How National Mirror Groups strengthen rare disease research and policy alignment in Europe

By connecting national priorities with European initiatives, NMGs support stronger coordination, knowledge exchange and alignment across the rare disease ecosystem.
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