May
28
2026
Key takeaways from ERDERA’s first in-person meeting uniting countries on rare disease research.

Aligning Countries for Rare Disease Research | ERDERA meeting in Sofia

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Call text draft setting out rules, eligibility and staged application process for the ERDERA Clinical Trial Call 2026.
July 24 @ 3:00 pm - 4:00 pm
This webinar will present a theoretical framework for situating ethics across research activities. The framework will then be brought to life through a relevant case study discussion, giving participants a concrete reference point for the episodes ahead.
This 2026 country report outlines the policy, research, care and support landscape for rare diseases in Poland.
Held in Riga on 9–10 June, the workshop brought National Mirror Group experts, researchers, clinicians and policymakers together to exchange practical lessons on how national rare disease registries can better support research and alignment across countries.