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The training responds to the growing need for patient advocates to understand data management, ethical considerations and the role of AI in rare disease research.
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ERDERA will launch its Clinical Trial Call 2026 (ECTC) on 1 July 2026, which will support multinational, GCP‑compliant early‑phase interventional clinical trials in the field of rare diseases. This call […]
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The World Orphan Drug Congress is the largest orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy, genetic testing, and market access, to real world […]
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Building on the legacy of the RE(ACT) Congress series (now reaching its ninth edition), RE(ACT) continues to serve as a meeting point for scientific innovation and real-world impact. The Congress brings together international leaders, renowned experts, […]
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The conference will take place in Rotterdam on 12–15 June 2027 and is planned as a hybrid event by the European Society of Human Genetics.