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26

–

28
Oct
Oct

The World Orphan Drug Congress is the largest orphan drug & rare disease meeting of its kind across the globe.

onsite
02

–

Nov

ERDERA Ethics & Regulatory Webinar Series

online
13

–

Nov

On 13 November 2026 in Dublin, Ireland, this event will explore how research, innovation, patient partnership and EU policy can improve rare disease care and strengthen Europe’s life sciences ecosystem.

hybrid
25

–

27
Nov
Nov

Building the first European network for chromatinopathy research.

onsite
25

–

26
Nov
Nov

Discover practical pathways to repurpose medicines for rare diseases, exchange experiences and best practices between underrepresented and high-performing countries, and build new partnerships at the ERDERA Knowledge Exchange Meeting in Riga on 25-26 November.

hybrid
14

–

Dec

This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.

online
10

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12
Mar
Mar

Building on the legacy of the RE(ACT) Congress series (now reaching its ninth edition), RE(ACT) continues to serve as a meeting point for scientific innovation and real-world impact.

onsite
07

–

10
Jun
Jun

The Open Academy x ERDERA accompanies patient advocates by offering rare-disease specific comprehensive training programmes that empower advocates with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners.

onsite
12

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15
Jun
Jun

The conference will take place in Rotterdam on 12–15 June 2027 and is planned as a hybrid event by the European Society of Human Genetics.

hybrid