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A webinar offering practical guidance on how to pitch to investors, aimed at researchers, clinicians, academics and SMEs working on rare disease projects.
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Intended for researchers, clinicians, data managers, ERN and National Mirror Group members involved in or interested in ERDERA diagnostic research.
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This ERDERA webinar will provide an overview of the regulatory and ethical requirements for advanced therapy medicinal product (ATMP) research, with a particular focus on genome editing and paediatric studies in rare diseases.
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A special anniversary event showcasing how innovation, collaboration and novel trial methodologies are advancing rare disease research.
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The World Orphan Drug Congress is the largest orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy, genetic testing, and market access, to real world […]
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Building the first European network for chromatinopathy research.
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Building on the legacy of the RE(ACT) Congress series (now reaching its ninth edition), RE(ACT) continues to serve as a meeting point for scientific innovation and real-world impact. The Congress brings together international leaders, renowned experts, […]
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The Open Academy x ERDERA accompanies patient advocates by offering rare-disease specific comprehensive training programmes that empower advocates with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners.
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The conference will take place in Rotterdam on 12–15 June 2027 and is planned as a hybrid event by the European Society of Human Genetics.
