The European partnership for rare diseases, uniting more than 170 public and private organisations across 37 countries
Welcome to ERDERA
RE(ACT)
Congress 2027
10-12 March 2027
Budapest
Ensuring that people living with rare diseases are involved as co-designers, implementers, and evaluators of research
ERDERA's Public and Patient Involvement and Engagement (PPIE)
Build the skills to shape the future of rare disease research!
WS Funding
Bringing public and private funding together to close knowledge gaps and drive rare disease research forward
WS Clinical Research Network
Linking Europe’s clinical research community to share data, speed up trials, and prepare the path to advanced therapies
WS Data Hub
Turning connected, FAIR data and digital tools into actionable insights for rare disease research
WS Expertise Services
Tailored expert support at every stage of the research journey
WS Accelerator
Helping promising ideas become investor-ready projects
WS Training
Building skills for the future of rare disease research, from the lab to leadership and innovation
WS International Alignment
Connecting countries and partners worldwide to strengthen collaboration and support underrepresented regions
Our pledge to the over 30 million people living with a rare disease in Europe
ERDERA Survey
Exploring consultancy needs for rare disease research
LATEST
News & Updates
LATEST
Multimedia
How National Mirror Groups strengthen rare disease research and policy alignment in Europe
Understanding ERDERA: Europe’s alliance for rare disease research
Aligning Countries for Rare Disease Research | ERDERA meeting in Sofia
ERDERA interview with Bojana Mirosavljevic, rare disease patient advocate from Serbia and founder and president of Život/Life.
ERDERA
Research Services
our mission
Goals & Impacts
Unify knowledge, resources and expertise
ERDERA brings under one roof a broad range of high-value services, resources and cross-disciplinary expertise to support rare disease research projects across Europe, from planning and design to efficient execution.
Boost clinical research with and for patients
Enabling every consenting patient living with a rare disease to be findable and enrolled in a suitable clinical study that matches their needs and preferences is a core goal in ERDERA. Empowered patients can contribute to the generation of high-quality evidence to improve diagnosis, understanding of diseases and develop treatments.
Spur innovation and EU competitiveness
The partnership aims to make Europe a global leader in rare disease research by increasing investment to spur innovation, aligning regional, national and European research strategies, and fostering collaboration among all stakeholders at global scale.
NEWSLETTER
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