Jun
04
2026
30 million people in Europe live with a rare disease. Yet most still lack a diagnosis or treatment. So what is ERDERA doing about it?

Understanding ERDERA: Europe’s alliance for rare disease research

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ERDERA trainings template (14)

Diagnostic Research Workstream Webinar Series – Session 3: The Data Reanalysis Approach

November 25 @ 1:00 pm - 2:00 pm
Intended for clinicians, clinical geneticists, researchers, data analysts and ERN members working in rare diseases
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Ethics & Artificial Intelligence in Scientific Research Webinar: Secure your spot!

December 4 @ 12:00 pm - 1:00 pm
Understanding the ethical concerns of AI in rare disease research and the principles of trustworthy AI
WODC EU 2026

ERDERA at World Orphan Drug Congress Europe 2026: exploring AI and advancing rare disease research

At the World Orphan Drug Congress Europe 2026 in Amsterdam, ERDERA contributed to discussions on artificial intelligence, clinical trials, emerging therapies and the future of rare disease research, including an interactive workshop on the responsible use of AI
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ERDERA General Assembly sets priorities for an integrated and delivery-focused third year

ERDERA’s third General Assembly brought partners together in Coimbra to review its second year, strengthen connections across the partnership and align priorities for a more integrated and delivery-focused third year.

ERDERA Search