ERDERA Learning Portal

The ERDERA Learning Portal brings together courses and resources for researchers, clinicians, patient representatives, policymakers, and industry professionals, suited to different levels of knowledge. Some of the training and resources presented are developed or endorsed by ERDERA, while others are provided by external organisations and are not ERDERA training. By supporting skills development, encouraging collaboration, and facilitating knowledge exchange, ERDERA helps connect people and expertise across the rare disease research community.

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Diagnosing Rare Diseases: from Clinic to research and back

Discover the role of research, clinical investigation and data sharing in diagnosing rare diseases.
mooc
basic

Management of multinational clinical trials for rare diseases

Practical online course on planning and managing multinational clinical trials across Europe, including regulatory/ethics, roles, budgets, and patient engagement.
e-learning
basic

From Lab to Clinic: Translational Research for Rare Diseases

Gain an overview of the issues, challenges, and opportunities in translating research into treatments for rare disease patients.
mooc
basic

Health Data Ethics & Regulatory Frameworks in Rare Disease Research

Discover the role of health data in rare disease research, exploring the ethics and regulatory frameworks governing data use.
mooc
intermediate

Innovative Therapies and Personalized Medicine for Rare Diseases

Learn how recent advances in medicine research are transforming the treatment of rare diseases.
mooc
intermediate

Closed training

Translational Medicine Explained (TMEX)

Are you a biomedical researcher who wants to explore how your work can be turned into patient benefit; or do you want to learn more about the process of medicinal product development and the career prospects available in the field? This course explains how translation of biomedical discoveries into products that provide patient benefit requires a truly multidisciplinary effort.
in-person training
intermediate