Your Category: Training and Education

November 25 @ 1:00 pm - 2:00 pm
Intended for clinicians, clinical geneticists, researchers, data analysts and ERN members working in rare diseases
December 4 @ 12:00 pm - 1:00 pm
Understanding the ethical concerns of AI in rare disease research and the principles of trustworthy AI
ERDERA’s third General Assembly brought partners together in Coimbra to review its second year, strengthen connections across the partnership and align priorities for a more integrated and delivery-focused third year.
November 16 @ 2:00 pm - 3:00 pm
ERDERA Ethics & Regulatory Webinar Series
September 16 @ 11:00 am - 12:30 pm
A webinar offering practical guidance on how to pitch to investors, aimed at researchers, clinicians, academics and SMEs working on rare disease projects.
September 30 @ 1:00 pm - 2:00 pm
This ERDERA webinar will provide an overview of the regulatory and ethical requirements for advanced therapy medicinal product (ATMP) research, with a particular focus on genome editing and paediatric studies in rare diseases.
Applications for the 2027 Open Academy x ERDERA Schools offer patient advocates and early-career researchers the opportunity to strengthen their knowledge and participation in rare disease research.
September 25 @ 1:00 pm - 2:00 pm
Intended for researchers, clinicians, data managers, ERN and National Mirror Group members involved in or interested in ERDERA diagnostic research.
June 7 - June 10
The Open Academy x ERDERA accompanies patient advocates by offering rare-disease specific comprehensive training programmes that empower advocates with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners.
ERDERA’s ethics and regulatory experts are launching a dedicated webinar series to help the rare disease research community navigate two fast-moving areas of biomedical research: Advanced Therapy Medicinal Products (ATMPs) and Artificial Intelligence.