News & Updates
Triplet repeat expansion project sets benchmark for public-private collaboration
A first in personalised medicine: CRISPR treatment for a baby sparks new debate on rare disease therapies
ERDERA Clinical Research Network Jamboree: Including underrepresented countries into innovative diagnostic research
What to expect at the FAIR Training Webinar 2025
Three afternoons of expert talks, case studies and interactive sessions to explore the value, practice and future of making rare disease data FAIR.
Multi stakeholder workshop advances prioritisation of rare diseases for ATMP development
A practical framework in the making
ERDERA launches online training on managing multinational clinical trials for rare diseases
Defining roles and responsibilities across stakeholders
Solvathons: a pan-European success story in rare disease diagnosis
Newly accepted Nature Genetics article inspires ERDERA’s plan to scale up cross-border collaborative workshops
Shaping the future of global rare disease research: Join the 2nd International Conference on Clinical Research Networks
15th Balkan congress of human genetics and 3rd Alpe Adria meeting of human genetics
Join ERDERA’s Open Session on 30 October and get inspired by leading voices in rare disease research
RE(ACT) Congress and IRDiRC Conference 2025
Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSW
Training for Resources joining the Rare Diseases Virtual Platform
Short Guide on Patient Partnerships in Rare Disease Research Projects – Basic, Pre-clinical, Translational & Social
Rare Disease Community | Tomasz Grybek
Rare Disease Community | Tomasz Grybek
Together4RD x ERDERA: Launch of the Toolkit for Public-Private Partnerships in Rare Disease Research
Rare Disease Community | Dorica Dan
Rare Disease Community | Tomasz Grybek
Rare Disease Community | Alexandre Méjat
Rare Disease Community | Tomasz Grybek
