May
08
2025

Together4RD x ERDERA: Launch of the Toolkit for Public-Private Partnerships in Rare Disease Research

The #Together4RD Toolkit is a new strategic resource to support effective, transparent, and impactful ERN-industry collaborations in #RareDisease research. Developed with input from both #ERN and industry, the Toolkit offers practical guidance, case studies, and tools to tackle legal, structural, and practical barriers to public-private partnerships.

News & Updates

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ERDERA announces its 2026 Open Session

This free online session will highlight patient and research perspectives, innovative clinical study methods, and emerging regulatory approaches
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Regulatory Insights of Advanced Therapies Research & Development

September 30 @ 1:00 pm - 2:00 pm
This ERDERA webinar will provide an overview of the regulatory and ethical requirements for advanced therapy medicinal product (ATMP) research, with a particular focus on genome editing and paediatric studies in rare diseases.
October 2026 (5)

ERDERA’s Open Session – 3rd General Assembly Meeting

October 21 @ 2:30 pm - 5:30 pm
A special anniversary event showcasing how innovation, collaboration and novel trial methodologies are advancing rare disease research.
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The 2027 Open Academy x ERDERA Schools is now open for application

Applications for the 2027 Open Academy x ERDERA Schools offer patient advocates and early-career researchers the opportunity to strengthen their knowledge and participation in rare disease research.

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