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May
08
2025

Together4RD x ERDERA: Launch of the Toolkit for Public-Private Partnerships in Rare Disease Research

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The#Together4RD Toolkit is a new strategic resource to support effective, transparent, and impactful ERN-industry collaborations in#RareDisease research. Developed with input from both#ERN and industry, the Toolkit offers practical guidance, case studies, and tools to tackle legal, structural, and practical barriers to public-private partnerships.

News & Updates

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Publication

Understanding ERDERA: Europe’s alliance for rare disease research

30 million people in Europe live with a rare disease. Yet most still lack a diagnosis or treatment. So what is ERDERA doing about it?
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ERDERA Clinical Trial Call 2026: pre‑announcement and key dates

ERDERA will launch its Clinical Trial Call 2026 (ECTC) on 1 July 2026, supporting multinational, GCP‑compliant early‑phase interventional clinical trials in rare diseases.
ERDERA CTC 2026

ERDERA Clinical Trial Call 2026 – Pre-announcement

Pre-announcement describing scope, eligibility and indicative timeline for the ERDERA Clinical Trial Call 2026, expected to open on 1 July 2026.
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Example of costing of Clinical Trial Budget

Budget example showing low and high cost ranges for a Phase 1 rare disease clinical trial with twenty subjects.

ERDERA's

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