May
08
2025

Together4RD x ERDERA: Launch of the Toolkit for Public-Private Partnerships in Rare Disease Research

The #Together4RD Toolkit is a new strategic resource to support effective, transparent, and impactful ERN-industry collaborations in #RareDisease research. Developed with input from both #ERN and industry, the Toolkit offers practical guidance, case studies, and tools to tackle legal, structural, and practical barriers to public-private partnerships.

News & Updates

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Diagnostic Research Workstream Webinar Series – Session 3: The Data Reanalysis Approach

November 25 @ 1:00 pm - 2:00 pm
Intended for clinicians, clinical geneticists, researchers, data analysts and ERN members working in rare diseases
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Ethics & Artificial Intelligence in Scientific Research Webinar: Secure your spot!

December 4 @ 12:00 pm - 1:00 pm
Understanding the ethical concerns of AI in rare disease research and the principles of trustworthy AI
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ERDERA at World Orphan Drug Congress Europe 2026: exploring AI and advancing rare disease research

At the World Orphan Drug Congress Europe 2026 in Amsterdam, ERDERA contributed to discussions on artificial intelligence, clinical trials, emerging therapies and the future of rare disease research, including an interactive workshop on the responsible use of AI
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ERDERA General Assembly sets priorities for an integrated and delivery-focused third year

ERDERA’s third General Assembly brought partners together in Coimbra to review its second year, strengthen connections across the partnership and align priorities for a more integrated and delivery-focused third year.

ERDERA Search