The editorial examines how shared frameworks, data standards, infrastructure and governance can help stakeholders address common barriers in rare disease research and medicine development.
A webinar offering practical guidance on how to pitch to investors, aimed at researchers, clinicians, academics and SMEs working on rare disease projects.
Members of the International Rare Diseases Research Consortium examine how pandemic preparedness models could inform a coordinated global approach to rare disease diagnosis, research, care and therapeutic development.
On November 12 at 11:00am (GMT+3) , IBG RareBoost will host Dr. Başak Uysal from the ERDERA Coordination Team. She will deliver a presentation titled “Accelerating Innovation Through Coordinated Research Platforms: The ERDERA Approach.”
The course will focus on the current status and advancements of clinical research especially to address unmet medical needs. Innovative methodologies, regulatory challenges, and the involvement of adolescents in clinical trials will be discussed.
ERDERA interviews Magda Chlebus, Executive Director Science Policy & Regulatory Affairs at EFPIA - European Federation of Pharmaceutical Industries and Associations.
