ERDERA Learning Portal
The ERDERA Learning Portal brings together courses and resources for researchers, clinicians, patient representatives, policymakers, and industry professionals, suited to different levels of knowledge. Some of the training and resources presented are developed or endorsed by ERDERA, while others are provided by external organisations and are not ERDERA training. By supporting skills development, encouraging collaboration, and facilitating knowledge exchange, ERDERA helps connect people and expertise across the rare disease research community.
Introduction on Patient-Reported Outcomes and considerations before including them in a clinical trial
Study case from the ERN-EuroBloodNet
webinar
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basic
Designing and conducting clinical trials in rare diseases
What industries expect for partnering with clinical sites
webinar
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basic
Definition of orphan drug by the EMA
The so-called ‘orphan drugs’ are intended to treat diseases so rare that sponsors are reluctant to develop them under usual marketing conditions.
webinar
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intermediate
Essential requirements before thinking about a clinical trial
webinar
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basic