Working with European Reference Networks (ERNs)
European Reference Networks (ERNs) bring together specialised healthcare centres across Europe to address complex and rare diseases.
Aligning with ERNs means working towards shared priorities, coordinated strategies and stronger connections between research and care. This helps ensure that research insights reach clinical practice — and that clinical needs inform research,connectingresearch with real-lifepatient care.
- Sharing research insights and opportunities with ERNs
- Enabling ERNs to feed needs and priorities back into research planning
- Supporting links to data sharing, clinical research coordination and training activities
List of Networks
You might also be interested in
ERDERA Policy Brief: European Biotech Act
The European Rare Diseases Research Alliance (ERDERA), together with the European Reference Networks (ERNs), provides the missing operational layer required to implement the European Biotech Act across the full innovation pathway —from discovery to patient access.
“National Mirror Groups are essentially a bridge — bringing European developments, standards and opportunities to clinicians and researchers.”
ERDERA interviews Prof. Radka Kaneva and Dr Petia Stratieva, two leading members of Bulgaria’s National Mirror Group (NMG), to explore how the country is working to align its rare disease ecosystem with European developments.
