State of the Art 2025 RD Report: Australia

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This 2025 country report outlines the policy, research, care and support landscape for rare diseases in Australia.

This report gives an overview of rare disease activities in Australia in 2025, including the national action plan, research and funding, registration and biobanking, organisation of care, newborn screening, diagnostics, patient organisations, information resources, training and orphan medicinal products.

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July 24 @ 3:00 pm - 4:00 pm
This webinar will present a theoretical framework for situating ethics across research activities. The framework will then be brought to life through a relevant case study discussion, giving participants a concrete reference point for the episodes ahead.
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