Making a Start: A toolkit for research charities to begin a PPI relationship

This new PPI toolkit helps health research charities and others starting on the journey to tackle this challenge.

How do we begin the conversation about research involvement with patients and the public? This new PPI toolkit helps health research charities and others starting on the journey to tackle this challenge. It offers particular guidance on facilitating a first workshop with PPI contributors.

It was developed in partnership by TCD PPI Ignite, HRCI and our member charities and the facilitator of a UK PPI-focused group of research charities and took a co-design approach to the process. The many different perspectives included have resulted in a well-rounded and thoughtful toolkit, designed to make you think about what is important in PPI as much as to help you in very practical ways to take your first steps.

Year of publication

2026

Author

Trinity College Dublin & Health Research Charities Ireland

You might also be interested in

Applications for the 2027 Open Academy x ERDERA Schools offer patient advocates and early-career researchers the opportunity to strengthen their knowledge and participation in rare disease research.
June 7 - June 10
The Open Academy x ERDERA accompanies patient advocates by offering rare-disease specific comprehensive training programmes that empower advocates with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners.
ERDERA (the European Rare Diseases Research Alliance) has opened its Clinical Trial Call to support multinational early-phase clinical trials in rare diseases. The call will fund studies designed to generate robust clinical evidence, strengthen regulatory readiness and make rare disease trials more feasible across countries.
On 3–4 June, EURORDIS–Rare Diseases Europe and Orphanet convened the rare disease community at ECRD 2026 in Prague around a shared call for coordinated European action, including the forthcoming European Blueprint for Rare Diseases.