NIHR Children and Young People Health Research Centre (NIHR HRC-PCH)

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Children, Young People and Family Involvement and Engagement Strategy 2024-2029

The National Institute for Health and Care Research (NIHR) Healthtech Research Centre in Paediatrics and Child Health (HRC-PCH) is dedicated to developing health technology for Children and Young People (CYP), from early life through to young adulthood. We are a national network, providing a comprehensive offer to the NHS and industry, combining expertise from world leading NHS Children’s Hospitals and Units, and Universities. The vision for HRC-PCH is to develop the best and most advanced technology-driven healthcare for and with CYP and families. Our aim is to publicise, encourage, support and facilitate appropriate, innovative and meaningful CYP and family involvement in all HRC-PCH activities and ensure diverse communities of underrepresented groups are at the heart of everything we do.

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Public involvement positively shapes research. By sharing their time and personal experiences with researchers, members of the public can influence what research takes place, how it’s carried out, and how the results are shared.
As public involvement in the design, conduct and dissemination of health research has become an expected norm and firmly enshrined in policy, interest in measuring its impact has also grown. Despite a drive to assess the impact of public involvement, and a growing body of studies attempting to do just this, a number of questions have been largely ignored.
Public involvement in research has evolved over the last two decades in a culture dominated by the principles of evidence-based medicine.
The impacts of involvement in research are often described in terms of the difference made to the research, the people involved and less frequently the researchers.