blank
blank

NIHR Children and Young People Health Research Centre (NIHR HRC-PCH)

1:1
Children, Young People and Family Involvement and Engagement Strategy 2024-2029

The National Institute for Health and Care Research (NIHR) Healthtech Research Centre in Paediatrics and Child Health (HRC-PCH) is dedicated to developing health technology for Children and Young People (CYP), from early life through to young adulthood. We are a national network, providing a comprehensive offer to the NHS and industry, combining expertise from world leading NHS Children’s Hospitals and Units, and Universities. The vision for HRC-PCH is to develop the best and most advanced technology-driven healthcare for and with CYP and families. Our aim is to publicise, encourage, support and facilitate appropriate, innovative and meaningful CYP and family involvement in all HRC-PCH activities and ensure diverse communities of underrepresented groups are at the heart of everything we do.

Acces this publication
Captura de pantalla 2026-05-15 093018

Year of publication

2026

Author

NIHR

You might also be interested in

ECRD 2026

ECRD 2026 in Prague strengthens the push for a coordinated EU Action Plan on rare diseases

On 3–4 June, EURORDIS–Rare Diseases Europe and Orphanet convened the rare disease community at ECRD 2026 in Prague around a shared call for coordinated European action, including the forthcoming European Blueprint for Rare Diseases.
ERDERA Open Academy 2026

Open Academy x ERDERA Schools in Barcelona strengthen practical links between patient advocacy and rare disease research

The 2026 Open Academy x ERDERA Schools in Barcelona brought patient advocates and early-career researchers together for practical training on medicines development, translational research and meaningful participation in rare disease research.
Open Academy

Open Academy x ERDERA Schools return to Barcelona to strengthen rare disease research participation

From 25–28 May in Barcelona, the EURORDIS-led Open Academy x ERDERA Schools will bring patient advocates and early-career researchers together for four days of rare disease training, exchange and peer learning.
joelfazhari-doctor-6989582_1920

Public Involvement in Research Impact Toolkit (PIRIT)

Public involvement positively shapes research. By sharing their time and personal experiences with researchers, members of the public can influence what research takes place, how it’s carried out, and how the results are shared.

ERDERA's

search form