The Czech Government has approved a new National Strategy for Rare Diseases for 2026–2035, establishing a long-term framework to improve care, diagnosis and support for people living with rare conditions. Developed by the Ministry of Health in collaboration with experts and patient organisations, the strategy aims to build a more coordinated and patient-centred system. Further information is available on the Czech Ministry of Health website.
The strategy prioritises improved coordination of care, faster and more accurate diagnosis, and expanded access to specialised services. It also places strong emphasis on the use of health data, including the development of a national rare disease registry, to support better planning and evaluation of care.
In addition, the framework promotes stronger links between healthcare and social services, aiming to ensure continuity of care throughout patients’ lives. Measures such as enhanced care coordination and improved access to information are expected to help patients and families navigate complex care pathways more effectively.
The strategy also reinforces national and international collaboration, including continued engagement with European Reference Networks (ERNs), helping to connect national expertise with wider European knowledge and resources.
News photo by Czech Wikipedia user Packa CC BY-SA 3.0