Mar
13
2026
A rare disease patient advocate reflects on Zoya’s Law, early diagnosis, and why patients are a crucial stakeholder in research, policy, and national rare disease systems.

ERDERA interview with Bojana Mirosavljevic, rare disease patient advocate from Serbia and founder and president of Život/Life.

Bojana Mirosavljevic

News & Updates

You might also be interested in

This 2025 country report outlines the policy, research, care and support landscape for rare diseases in France.
November 25 @ 1:00 pm - 2:00 pm
Intended for clinicians, clinical geneticists, researchers, data analysts and ERN members working in rare diseases
December 4 @ 12:00 pm - 1:00 pm
Understanding the ethical concerns of AI in rare disease research and the principles of trustworthy AI
At the World Orphan Drug Congress Europe 2026 in Amsterdam, ERDERA contributed to discussions on artificial intelligence, clinical trials, emerging therapies and the future of rare disease research, including an interactive workshop on the responsible use of AI