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What guidance exists to support patient partner compensation practices?

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A scoping review of available policies and guidelines

An integral aspect of patient engagement in research, also known as patient and public involvement, is appropriately recognising patient partners for their contributions through compensation (e.g., coauthorship, honoraria). Despite known benefits to compensating patient partners, our previous work suggested compensation is rarely reported and researchers perceive a lack of guidance on this issue. To address this gap, we identified and summarised available guidance and policy documents for patient partner compensation.

Acces this publication
Captura de pantalla 2026-05-14 093851

Year of publication

2026

Author

Fox G, Fergusson DA, Sadeknury A, Nicholls SG, Smith M, Stacey D, Lalu MM

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