State of the art 2025 rare disease country report: Ireland

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This 2025 country report outlines the policy, research, care and support landscape for rare diseases in Ireland.

This report gives an overview of rare disease activities in Ireland in 2025, including the national action plan, research and funding, registration and biobanking, organisation of care, newborn screening, diagnostics, patient organisations, information resources, training and orphan medicinal products.

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State of the art rare disease country reports ERDERA 2025

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