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Charities face increasing demands from all sectors to support patient and public involvement (PPI) and to work in partnerships. Partnership work uses funds and resources. Charities must manage these costs to ensure financial sustainability.

This guidance, created by a coalition of health charities, including Health Research Charities Ireland and UK-based organisations Cancer 52, the Patient Information Forum (PIF), the Charities Research Involvement Group, and the National Rheumatoid Arthritis Society, is designed to help charities and partners calculate Fair Market Value (FMV) when charities decide to work in partnership and to charge for these activities.

Charities have huge value as partners. It is critical this value is understood and recognised in the process of setting FMV. Our aim is to support the independence of charities and increase transparency about payment. For charities partnership work to continue and grow, there must be fair and transparent payment which contributes to the sustainability of the sector.

Year of publication

2026

Author

HRCI & Sasha Daly – Interim CEO, Cancer 52 Jane Lyons –Former CEO Cancer 52 Bec Hanley – Charities Research Involvement Group Dr Avril Kennan – CEO, Health Research Charities Ireland Clare Jacklin – Former CEO, NRAS Peter Foxton – CEO, NRAS Sophie Randall – Director, PIF Sheena Campbell – Communications Manager, PIF

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