ERDERA Strategic Research and Innovation Agenda

The SRIA sets ERDERA’s objectives and performance indicators to guide rare disease research and innovation across Europe.

This Strategic Research and Innovation Agenda (SRIA) describes the SRIA development process and sets out the ambition, vision and mission of the European Rare Diseases Research Alliance (ERDERA). It defines ERDERA’s general, specific and operational objectives, and includes performance indicators for monitoring and evaluation.

You might also be interested in

At the World Orphan Drug Congress Europe 2026 in Amsterdam, ERDERA contributed to discussions on artificial intelligence, clinical trials, emerging therapies and the future of rare disease research, including an interactive workshop on the responsible use of AI
ERDERA’s third General Assembly brought partners together in Coimbra to review its second year, strengthen connections across the partnership and align priorities for a more integrated and delivery-focused third year.
ERDERA marked the close of its second year with an Open Session on ultra-rare diseases, bringing together European, regulatory and scientific perspectives on how innovation can reach patients.
The Joint Transnational Call is expected to open on 1 December 2026, with an information webinar planned for 14 December.