ERDERA Strategic Research and Innovation Agenda

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The SRIA sets ERDERA’s objectives and performance indicators to guide rare disease research and innovation across Europe.

This Strategic Research and Innovation Agenda (SRIA) describes the SRIA development process and sets out the ambition, vision and mission of the European Rare Diseases Research Alliance (ERDERA). It defines ERDERA’s general, specific and operational objectives, and includes performance indicators for monitoring and evaluation.

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ERDERA’s ethics and regulatory experts are launching a dedicated webinar series to help the rare disease research community navigate two fast-moving areas of biomedical research: Advanced Therapy Medicinal Products (ATMPs) and Artificial Intelligence.
July 24 @ 3:00 pm - 4:00 pm
This webinar will present a theoretical framework for situating ethics across research activities. The framework will then be brought to life through a relevant case study discussion, giving participants a concrete reference point for the episodes ahead.
Call text draft setting out rules, eligibility and staged application process for the ERDERA Clinical Trial Call 2026.
Feedback is open until 14 July 2026, giving stakeholders an early opportunity to comment during the preparation of a likely legislative proposal for a Council regulation.