National Mirror Groups
A National Mirror Group (NMG) is a multi‑stakeholder national hub established in every country participating in ERDERA to strengthen rare disease research and policy alignment.
NMGs bring together key national actors — including authorities, researchers, funders, healthcare providers, and patient organisations — to ensure a cohesive rare disease community and an effective bridge to international collaboration.
National Mirror Groups (NMGs) play a central role in ensuring coordination at both national and international levels. Their purpose is to:
- Build or sustain a cohesive rare disease community at national level.
- Channel national needs and good practices into ERDERA.
- Disseminate and help implement ERDERA outputs at home.
- Foster peer-to-peer exchange between countries.
Austria
The National Mirror Group in Austria has been operational since 2024.The St. Anna Children’s Cancer Research Institute (CCRI) serves as the primary national contact point.
National Rare Disease Reports
National Action Plan for Rare Diseases in Austria
Belgium
The National Mirror Group in Belgium has been operational since 2025.The SCIENSANO serves as the primary national contact point.
National Rare Disease Reports
Bulgaria
The National Mirror Group in Bulgaria has been operational since 2025.The Rare Diseases Bulgaria (RDB) serves as the primary national contact point.
National Rare Disease Reports
Canada
The National Mirror Group in Canada has been operational since 2024.The MICYRN serves as the primary national contact point.
National Rare Disease Reports
Cyprus
The National Mirror Group in Cyprus has been operational since 2024.The Thalassaemia International Federation (TIF) serves as the primary national contact point.
National Rare Disease Reports
Estonia
The National Mirror Group in Estonia has been operational since 2024.The University of Tartu (UT) serves as the primary national contact point.
National Rare Disease Reports
France
The National Mirror Group in France has been operational since 2019.The Institutnationaldelasanté etdelarecherchemédicale (INSERM) serves as the primary national contact point.
National Rare Disease Reports
Germany
The National Mirror Group in Germany has been operational since 2026.The GermanAerospaceCenter (DLR) serves as the primary national contact point.
National Rare Disease Reports
Ireland
The National Mirror Group in Ireland has been operational since 2024.The Health Research Board (HRB) serves as the primary national contact point.
National Rare Disease Reports
Latvia
The National Mirror Group in Latvia has been operational since 2024.The Children’s Clinical University Hospital (CCUH) serves as the primary national contact point.
National Rare Disease Reports
Lithuania
The National Mirror Group in Lithuania has been operational since 2024.The Vilnius University Hospital Santaros Klinikos (VUHSK) serves as the primary national contact point.
National Rare Disease Reports
Netherlands
The National Mirror Group in Netherlands has been operational since 2019.The ZonMw serves as the primary national contact point.
National Rare Disease Reports
New Zealand
The National Mirror Group in New Zealand has been operational since 2025.Rare Disorders NZ serves as the primary national contact point.
National Rare Disease Reports
Portugal
The National Mirror Group in Portugal has been operational since 2020.The Instituto Nacional de Saúde (INSA) serves as the primary national contact point. The National Mirror Group provides regular updates through the following Social Media Account:
National Rare Disease Reports
Serbia
The National Mirror Group in Serbia has been operational since 2025.The Institute of Molecular Genetics
and Genetic Engineering (IMGGE) serves as the primary national contact point.
National Rare Disease Reports
Slovakia
The National Mirror Group in Slovakia has been operational since 2024.The Ministry of Health of the Slovak Republic (SK MoH) serves as the primary national contact point.
National Rare Disease Reports
Spain
The National Mirror Group in Spain has been operational since 2025.The Insituto de Salud Carlos III (ISCIII) serves as the primary national contact point.
National Rare Disease Reports
Sweden
The National Mirror Group in Sweden has been operational since 2024.The Swedish Research Council serves as the primary national contact point.
National Rare Disease Reports
Türkiye
The National Mirror Group in Türkiye has been operational since 2024.The IZMIR BIOMEDICINE AND GENOME CENTER (IBG) serves as the primary national contact point.
National Rare Disease Reports
UK
The National Mirror Group in UK has been operational since 2021.The Newcastle University (UNEW) serves as the primary national contact point.
National Rare Disease Reports
The role of National Mirror Groups (NMGs)
Understand the concept of NMGs with this Knowledge Pill
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