Your Tag: Ireland

Irish Presidency of the EU in 2026

Why Rare Diseases Matter for Europe’s Future Embedding Research and Innovation as Standard of Care in Rare Disease

November 13 @ 10:00 am - 5:15 pm
On 13 November 2026 in Dublin, Ireland, this event will explore how research, innovation, patient partnership and EU policy can improve rare disease care and strengthen Europe’s life sciences ecosystem.

ERDERA launches Clinical Trial Call 2026 to advance early-phase clinical trials for rare diseases

ERDERA has opened its Clinical Trial Call 2026 to support multinational early-phase clinical trials in rare diseases. The call will fund sponsor-led, GCP-compliant studies designed to generate robust clinical evidence, strengthen regulatory readiness and make rare disease trials more feasible across countries.
webinar

Launching a New Guide to EDI/Inclusion in PPI

February 25 @ 1:00 pm - 2:00 pm
A short webinar to launch a new, friendly guide to Equality, Diversity and Inclusion (EDI) in Public and Patient Involvement (PPI).
State of the art rare disease country reports ERDERA 2025

State of the art 2025 rare disease country report: Ireland

This 2025 country report outlines the policy, research, care and support landscape for rare diseases in Ireland.
“There’s a lot of value in connecting with other countries — learning what has worked, what hasn’t, and applying those lessons”

“There’s a lot of value in connecting with other countries — learning what has worked, what hasn’t, and applying those lessons”

ERDERA interviews Gavin Lawler co-ordinates the Irish National Mirror Group (NMG) on rare diseases as Programme Manager within the Health Research Board Ireland.

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