Your Tag: France

Young Patients Training

ERDERA opens call for young rare disease advocates to join training in Paris

Taking place on 23–25 April at Institut Imagine in Paris
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AFM‑Telethon launches its 2026 call to fund scientific and medical research in neuromuscular disorders

A funding opportunity for neuromuscular and rare genetic disease research is now open
“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone” Alexandre Mejat

“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone”

ERDERA interviews Alexandre Méjat, a person living with Bethlem myopathy, a biologist with a PhD, and AFM‑Téléthon’s representative in ERDERA.
ERDERA Consortium 2024

ERDERA’s Opening Ceremony Congregates Nearly 600 Participants to Mark the Start of the New Partnership

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Be part of a major milestone in rare disease research: Join ERDERA’s launch event!

ERDERA launches Clinical Trial Call 2026 to advance early-phase clinical trials for rare diseases

ERDERA has opened its Clinical Trial Call 2026 to support multinational early-phase clinical trials in rare diseases. The call will fund sponsor-led, GCP-compliant studies designed to generate robust clinical evidence, strengthen regulatory readiness and make rare disease trials more feasible across countries.

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