Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe.
Look for ERDERA's booth at the World Orphan Drug Congress in Amsterdam
Open Session
Join ERDERA’s
Join the free and online public session on 30th of October
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ERDERA Funding
The ERDERA Networking Support Scheme (NSS) Call is open!
News & Press Releases
Shaping the future of global rare disease research: Join the 2nd International Conference on Clinical Research Networks
Join ERDERA’s Open Session on 30 October and get inspired by leading voices in rare disease research
“Data is the fuel of ERDERA’s mission to enhance our insights in rare diseases, to expedite diagnosis, and to find new treatments”
Research Services
our mission
Goals & Impacts
Unify knowledge, resources and expertise
ERDERA brings under one roof a broad range of high-value services, resources and cross-disciplinary expertise to support rare disease research projects across Europe, from planning and design to efficient execution.
Boost clinical research with and for patients
Enabling every consenting patient living with a rare disease to be findable and enrolled in a suitable clinical study that matches their needs and preferences is a core goal in ERDERA. Empowered patients can contribute to the generation of high-quality evidence to improve diagnosis, understanding of diseases and develop treatments.
Spur innovation and EU competitiveness
The new partnership aims to make Europe a global leader in rare disease research by increasing investment to spur innovation, aligning regional, national and European research strategies, and fostering collaboration among all stakeholders at global scale.
Events
15th Balkan congress of human genetics and 3rd Alpe Adria meeting of human genetics
Join ERDERA’s Open Session on 30 October and get inspired by leading voices in rare disease research
World Orphan Drug Congress Europe 2025
Applications for Open Academy Schools 2026
Keep connected through ERDERA
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Better Prevention Diagnosis Treatment
This is our pledge
to 30+ million people
living with a rare disease
in Europe