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Tag: Romania

Insights frInsights from the ERDERA consultancy service surveyom the ERDERA consultancy service survey

Insights from the ERDERA consultancy service survey

Preliminary results point interest across the rare disease research community, while highlighting underrepresentation of some countries and stakeholders
Cover for the State-of-the-Art RD Country Reports 2025

State of the Art 2025 RD Report: Romania

This 2025 country report outlines the policy, research, care and support landscape for rare diseases in Romania.
“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable

“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable.”

ERDERA interviews Dorica Dan, President of the Romanian Prader-Willi Association (RPWA), the Romanian National Alliance for Rare Diseases (RONARD) and the Romanian Rare Cancers Association, and Vice-President of EURORDIS–Rare Diseases Europe.

ERDERA's

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