Inclusive Involvement: Practical Steps You Can Take Today

A Friendly Guide to Equality, Diversity & Inclusion (EDI) Equality, Diversity & Inclusion (EDI) Equality, Diversity & Inclusion (EDI) in Public and Patient Involvement (PPI)

This guide is about turning the ideas of equality, diversity, and inclusion (EDI) into practical action. We wanted to move beyond theory and show what you can actually do to make public and patient involvement (PPI) in research more welcoming and enjoyable for everyone.

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October 2 @ 10:00 am - 5:15 pm
On 13 November 2026 in Dublin, Ireland, this event will explore how research, innovation, patient partnership and EU policy can improve rare disease care and strengthen Europe’s life sciences ecosystem.
Applications for the 2027 Open Academy x ERDERA Schools offer patient advocates and early-career researchers the opportunity to strengthen their knowledge and participation in rare disease research.
June 7 - June 10
The Open Academy x ERDERA accompanies patient advocates by offering rare-disease specific comprehensive training programmes that empower advocates with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners.
ERDERA (the European Rare Diseases Research Alliance) has opened its Clinical Trial Call to support multinational early-phase clinical trials in rare diseases. The call will fund studies designed to generate robust clinical evidence, strengthen regulatory readiness and make rare disease trials more feasible across countries.