Jan
26
2026
Launched in September 2024, ERDERA is already building strong momentum across the rare disease research landscape.

Shaping the future of rare disease research: insights from ERDERA

In this video, members of the ERDERA partnership reflect on what has been achieved so far, what the initiative represents for the wider rare disease research ecosystem, and the impact it is expected to have in the years ahead.

Hear insights from James Levine, Daria Julkowska, Bojana Mirosavljevic, and Milan Macek as they share their perspectives on collaboration, progress, and the future of rare disease research in Europe and beyond.

Watch the video!

News & Updates

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ERDERA marked the close of its second year with an Open Session on ultra-rare diseases, bringing together European, regulatory and scientific perspectives on how innovation can reach patients.
ERDERA JTc 2027

ERDERA pre-announces 2027 Joint Transnational Call on recently identified rare diseases

The Joint Transnational Call is expected to open on 1 December 2026, with an information webinar planned for 14 December.
Training online

Information Webinar – ERDERA Joint Transnational Call 2027

December 14 @ 3:00 pm - 4:00 pm
This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.
Cover of the 16-country rare disease policy assessment, October 2026.

Reckoning With the Rare Disease Landscape. A 16 Country Policy Landscape Assessment across the Life Course.

The assessment compares diagnosis, treatment access and national governance across 16 countries, examining gaps in rare disease support throughout the life course.

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