Jan
26
2026
Launched in September 2024, ERDERA is already building strong momentum across the rare disease research landscape.

Shaping the future of rare disease research: insights from ERDERA

blank

In this video, members of the ERDERA partnership reflect on what has been achieved so far, what the initiative represents for the wider rare disease research ecosystem, and the impact it is expected to have in the years ahead.

Hear insights from James Levine, Daria Julkowska, Bojana Mirosavljevic, and Milan Macek as they share their perspectives on collaboration, progress, and the future of rare disease research in Europe and beyond.

Watch the video!

News & Updates

You might also be interested in

The 2nd International Conference on Clinical Research Networks (CRNs), organised by European Rare Diseases Research Alliance (ERDERA), Rare Disease International (RDI) and International Rare Diseases Research Consortium (IRDiRC), brought together the global rare disease community to advance innovative clinical research solutions, with a special focus on low- and middle-income countries (LMICs).
30 million people in Europe live with a rare disease. Yet most still lack a diagnosis or treatment. So what is ERDERA doing about it?
ERDERA will launch its Clinical Trial Call 2026 (ECTC) on 1 July 2026, supporting multinational, GCP‑compliant early‑phase interventional clinical trials in rare diseases.
Pre-announcement describing scope, eligibility and indicative timeline for the ERDERA Clinical Trial Call 2026, expected to open on 1 July 2026.