blank
blank
Nov
10
2024

Our mission | Daria Julkowska, ERDERA Scientific Coordinator

Daria Julkowska

For millions of people, rare diseases are more than just statistics—they are daily challenges, unanswered questions, and battles for better care. At ERDERA, our mission is simple but urgent: to improve the lives of over 30 million people living with rare diseases in Europe. In this video, Daria Julkoska, ERDERA’s Coordinator, explains the three essential ways how ERDERA plans to work towards a brighter future for people living with rare diseases.

News & Updates

You might also be interested in

Copia de ERDERA training and announcements template

Advancing Rare Disease Diagnostics: The ERDERA Diagnostic Research Workstream Webinar Series

A new online learning series for ERN professionals, clinicians, researchers, and stakeholders.
ERDERA First Policy Think Tank meeting

ERDERA Policy Think Tank meets in Paris to advance data and registry policy for rare diseases

Bringing together policy makers, researchers and data experts to align on how registry data can better support rare disease research and evidence‑based policy across Europe.
Insights frInsights from the ERDERA consultancy service surveyom the ERDERA consultancy service survey

Insights from the ERDERA consultancy service survey

Preliminary results point interest across the rare disease research community, while highlighting underrepresentation of some countries and stakeholders
Bojana Mirosavljevic

“Patients are the glue that keeps all other stakeholders together—without them, the system simply does not exist”

ERDERA interviews Bojana Mirosavljevic, scientist and founder of the Život/Life association in Serbia; and one of the country’s leading voices rare disease patient advocacy.

ERDERA's

search form