Your Tag: Daria Julkowska

ERDERA - World Orphan Drug Congress - JVDPhotography-40

Can AI deliver for rare diseases? ERDERA brings the debate to WODC Europe

ERDERA will return to the World Orphan Drug Congress Europe with a booth and an interactive pre-conference workshop examining where artificial intelligence can support rare disease research and therapeutic development, and where human expertise remains essential.

ERDERA launches Clinical Trial Call 2026 to advance early-phase clinical trials for rare diseases

ERDERA has opened its Clinical Trial Call 2026 to support multinational early-phase clinical trials in rare diseases. The call will fund sponsor-led, GCP-compliant studies designed to generate robust clinical evidence, strengthen regulatory readiness and make rare disease trials more feasible across countries.
WODC Boston 2026

At World Orphan Drug Congress USA, ERDERA highlights how connected clinical research networks can make rare disease trials more feasible

Boston, 9–11 June 2026: ERDERA's Scientific Coordinator joined the World Orphan Drug Congress USA to set out how stronger clinical research networks can make rare disease trials more feasible across sites and borders.
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Advancement of Treatments for Rare Diseases

June 16 - June 17
The two-day event will focus on translating research and policy initiatives into tangible benefits for Rare Disease patients through better prevention, diagnosis, and treatment.
Woman helping out a person with a disease

Women’s Day highlights widening gender inequalities in rare diseases

Drawing on Europe-wide patient and carer surveys, ERDERA highlights how gender can shape diagnostic delays, care burden and the evidence base for rare-disease research.
EDERA WODC & GAM - Preview- JVDPhotography-4

ERDERA Open Session: science and advocacy align to advance rare disease research and care

Amsterdam and online, convening clinicians, scientists and advocates to share progress and the power of patient led policy to improve diagnosis and care.
EDERA WODC & GAM - Preview- JVDPhotography-1-min

ERDERA at WODC Europe 2025: wrap up and next steps

Sharing patient‑centred methods, early diagnostics, and data‑driven trial innovation to accelerate rare disease research across Europe.
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ERDERA and the European Genomic Data Infrastructure project work together to strengthen rare disease data, diagnostics and research

Fruitful collaboration ahead
Erdera Open Session 1-1

Join ERDERA’s Open Session on 30 October and get inspired by leading voices in rare disease research 

International Patient Organisation for Primary Immunodeficiencies IPOPI

Patients as equal partners – ERDERA’s vision echoes in Brussels

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