Enabling rare disease researchers to access multidisciplinary expertise, improve project quality, and accelerate innovation from bench to bedside.
Expertise Services Hub
The ERDERA Expertise Service Hub (ESH) provides a central access point for rare disease (RD) researchers to obtain tailored expert support across key domains of translational research.
It brings together four interconnected services — mentoring, regulatory support, methodological support, and consultancy — to help projects advance efficiently from discovery to clinical implementation.
Mentoring
Connecting researchers with experienced mentors who guide project design, regulatory preparedness, and innovation strategy, ensuring alignment with translational objectives.
Regulatory and Ethics
Offering expertise on regulatory pathways, interactions with competent authorities, and integration of ethical and compliance considerations throughout the research process.
Methodology Services
Strengthening research quality through expert guidance on clinical trial design, epidemiology, real-world data use, and advanced analytics.
Consultancy
Aiming to provide on-demand, fee-based expert input to address specific scientific, ethical, or strategic challenges, supported by a curated catalogue of experts and services.
A cross-cutting approach
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- Goal 1
- Goal 2
- Goal 3
- Goal 4
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A cross-cutting approach
Patient and public involvement and engagement (PPIE)
The VP has a set of ontologies that are used to annotate data, metadata, metadata schemas and data services.
Integrating Data Schemes
Resources such as datasets, patient registries, guidelines and biobanks are made available to the Virtual Platform through metadata that follow the provided metadata schemas.
Public-Private Accelerator
We provide technical documentation to help stakeholders to provide or consume VP resources.
Practical Resources
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Explore connected resources via an interactive interface that visually represents relationships between datasets, samples, and research projects.
FAQ Section
Useful when looking for something specific or attempting to navigate processes.
Contact the Expertise Services Hub
Get in touch with our pool of experts.
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