Data Hub

The ERDERA Data Services Hub (DSH) is the gateway to unlocking the full potential of data and digital resources within the European Rare Disease Research Alliance (ERDERA).

Data Services Hub

At the heart of ERDERA’s mission is the creation of a collaborative, integrated ERDERA Data Hub—a network of Findable, Accessible, Interoperable, and Reusable (FAIR) data sources, analysis methods, knowledge bases, and computing tools. This network is not built in isolation: it is co-developed by ERDERA partners, ensuring that each resource gains value through interoperability and accessibility.

The DSH transforms how researchers, clinicians, and other stakeholders access, share, analyze, and benefit from rare disease data—whether they are creating new resources or integrating existing ones.

What You’ll Find in the Data Services Hub

Methods

Practical guidance and procedures to help data providers and researchers integrate their resources into the ERDERA Virtual Platform (VP) ecosystem. Example: VP onboarding support to help you align your data with FAIR principles.

Tools

Ready-to-use technical components and specifications to facilitate data transformation and interoperability.
Example: FAIR-in-a-Box, Beacon2 API specifications—tools designed to streamline data preparation and sharing.

Services

A mix of human and technical support to help you apply DSH methods and tools effectively. Examples:

Dedicated onboarding support for the VP
Interactive query services
Self-service resources: documentation, tutorials, and implementation packages

Start Exploring the Virtual Platform

Ready to connect your data, discover interoperable resources, or access computing services? (Link to be updated with the actual URL)

Whether you’re a data creator or a researcher looking for advanced analysis tools, the DSH is your launchpad into a new era of FAIR data in rare disease research.

For more information, resources, and support for people living with rare diseases, visit EURORDIS – Rare Diseases Europe.