Jun
04
2026
30 million people in Europe live with a rare disease. Yet most still lack a diagnosis or treatment. So what is ERDERA doing about it?

Understanding ERDERA: Europe’s alliance for rare disease research

News & Updates

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This free online session will highlight patient and research perspectives, innovative clinical study methods, and emerging regulatory approaches
September 30 @ 1:00 pm - 2:00 pm
This ERDERA webinar will provide an overview of the regulatory and ethical requirements for advanced therapy medicinal product (ATMP) research, with a particular focus on genome editing and paediatric studies in rare diseases.
October 21 @ 2:30 pm - 5:30 pm
A special anniversary event showcasing how innovation, collaboration and novel trial methodologies are advancing rare disease research.
Applications for the 2027 Open Academy x ERDERA Schools offer patient advocates and early-career researchers the opportunity to strengthen their knowledge and participation in rare disease research.