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NMG workshop 2026

ERDERA National Mirror Groups workshop: Creating, evolving and utilising national registries to advance rare disease research

Held in Riga on 9–10 June, the workshop brought National Mirror Group experts, researchers, clinicians and policymakers together to exchange practical lessons on how national rare disease registries can better support research and alignment across countries.
online workshop

Underrepresented countries help shape ERDERA’s roadmap for a more inclusive European rare disease research ecosystem

Successful online workshop connects underrepresented European countries in rare disease research
EDERA WODC & GAM - Preview- JVDPhotography-1-min

ERDERA at WODC Europe 2025: wrap up and next steps

Sharing patient‑centred methods, early diagnostics, and data‑driven trial innovation to accelerate rare disease research across Europe.
webinar

ERDERA workshop to widen participation of underrepresented countries in rare disease research

20–21 November — A practical ERDERA workshop to connect researchers, clinicians, patients and funders from underrepresented countries to strengthen capacity for inclusive rare disease research.
Europe’s rare-disease alliance charts next steps at Riga workshop

Europe’s rare-disease alliance charts next steps at Riga workshop

Unveiling fresh data from a survey of 32 European rare-disease plans
ERDERA at the Chan Zuckerberg Initiative workshop on systematically characterising rare diseases

ERDERA at the Chan Zuckerberg Initiative workshop on systematically characterising rare diseases

ERDERA's

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