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The FAIR principles: making rare disease data work better

Responsible data management can help accelerate research and improve collaboration in rare diseases.
Ana Rath at ERDERA GAM 2025

“By handling data in a structured and responsible way, we can build a shared European ecosystem”

Ana Rath, Data Services Co-Lead in ERDERA, explains how the consortium is helping researchers and data holders make rare disease data more findable, interoperable and reusable while protecting privacy and keeping data holders in control.

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