Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe.
Look for ERDERA's booth at the
World Orphan Drug Congress
in AmsterdamOpen Session
Join ERDERA’s
Join the free and online public session on 30th of October
Connected for impact:
2nd International Conference on Clinical Research Networks
9 & 10 December 2025
ERDERA Funding
The 2026 Joint Transnational Call
Pre-Announcement is now live!
LATEST
News & Updates
Information Webinar – ERDERA Joint Transnational Call 2026
ERDERA
Research Services
our mission
Goals & Impacts
Unify knowledge, resources and expertise
ERDERA brings under one roof a broad range of high-value services, resources and cross-disciplinary expertise to support rare disease research projects across Europe, from planning and design to efficient execution.
Boost clinical research with and for patients
Enabling every consenting patient living with a rare disease to be findable and enrolled in a suitable clinical study that matches their needs and preferences is a core goal in ERDERA. Empowered patients can contribute to the generation of high-quality evidence to improve diagnosis, understanding of diseases and develop treatments.
Spur innovation and EU competitiveness
The new partnership aims to make Europe a global leader in rare disease research by increasing investment to spur innovation, aligning regional, national and European research strategies, and fostering collaboration among all stakeholders at global scale.
Upcoming Events
ERDERA will mark its 1st anniversary with a stimulating online event open to the entire rare disease community. Leading experts in the field of neurology, neurometabolic diseases and patient advocacy […]
The course will focus on the current status and advancements of clinical research especially to address unmet medical needs. Innovative methodologies, regulatory challenges, and the involvement of adolescents in clinical trials will be discussed.
Bringing together global experts, healthcare professionals, patient advocates, and policymakers to advance knowledge and strengthen international collaboration in the field of rare diseases.
Presenting new evidence from an ERDERA survey across more than 30 countries and co‑create practical solutions to improve inclusion, networking and capacity development.
ERDERA – the European Rare Diseases Research Alliance – is pleased to announce the upcoming 2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases, co-organised in collaboration with […]
This information webinar on the 2026 Joint Transnational Call for Proposals is scheduled for 16 December 2025, 15:00–17:00 CET, focusing on resolving unsolved rare genetic and non‑genetic diseases through variant validation and new technological approaches.
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