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Your Tag: Rare Disease International (RDI)

CRN Conference Group Photo

Clinical experts and patient advocates gather in Heidelberg to turn discussion into action on global rare disease research

From shared standards to local impact, the 2nd Clinical Research Networks Conference agreed concrete next steps for interoperable clinical research networks worldwide
are Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases

13th European Conference on Rare Disease and Orphan Drugs

June 3 - June 4
The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe.
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One month to go: register now for the 2nd International Conference on Clinical Research Networks

9-10 December, Heidelberg and online — last places for in person attendance; free livestream for registered participants.
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2nd International Conference on Clinical Research Networks: Connected for impact

December 9 - December 10
Join the 2nd International Conference on Clinical Research Networks: Connected for impact!
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From discussion to action: a hands‑on conference to help shape the rare disease clinical research roadmap

9–10 December 2025, Heidelberg and online
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Shaping the future of global rare disease research: Join the 2nd International Conference on Clinical Research Networks

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