Your Tag: Patient registries

The Joint Transnational Call is expected to open on 1 December 2026, with an information webinar planned for 14 December.
The document outlines the Call's 2027 proposed research scope, eligibility criteria, consortium requirements and preliminary application timetable for multinational collaborations on recently identified rare diseases.
Sweden has adopted its first national strategy for rare health conditions, aiming to improve coordination, equity and access to care between 2026 and 2030.