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Jan
10
2026

How Clinical Research Networks are transforming rare disease research | CRNs conference highlights

The 2nd International Conference on Clinical Research Networks (CRNs) showcased the vital role of CRNs as structured collaborations that unite expert clinical sites, laboratories, patient organisations and other key stakeholders. In this video, hear directly from conference participants as they share insights on how Clinical Research Networks are accelerating prevention, diagnosis, observational studies and clinical trials for rare and groups of rare diseases. Discover how CRNs are helping to shape the future of rare disease research, innovation and patient care worldwide. The conference was organised by ERDERA, Rare Diseases International (RDI) and the International Rare Diseases Research Consortium (IRDiRC). Next edition: December 2027.

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