ORGANIZED BY:
EURORDIS Open Academy Schools, operating under ERDERA (co‑funded by EURORDIS and ERDERA).
LAUNCH DATE:
Applications open 5 January 2026 (call for applications runs 5 January–2 February 2026). Programme pre‑training kick‑off: March 2026.
Hybrid training programme “Navigating Rare Disease Research: Data, Ethics, and AI in Europe” for 20 participants (rare disease patient advocates in Europe and PhD/up to two years post‑PhD researchers). Online learning runs March–July 2026, followed by in‑person sessions on 14–15 September 2026 in Barcelona. Focuses on data management, ethical/regulatory considerations, data protection (including GDPR), and AI in rare disease research, with an emphasis on enabling advocates to engage as equal partners.
Flyer link: Download the training flyer (PDF).
To apply see the application link.
