The next ECRD will take place on 3–4 June 2026 in Prague under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”.
The European Conference on Rare Diseases & Orphan Products (ECRD) is often described as one of the key patient-led policy events on rare diseases in Europe.
The conference brings together people living with rare diseases, patient advocates, policymakers, healthcare professionals, regulators, representatives from industry, and officials from EU Member States. This multidisciplinary format aims to support informed discussion and contribute to policy development relevant to the rare disease community.
ECRD 2026 is planned as a hybrid event, with an anticipated 500 participants onsite in Prague and more than 300 online. The format is designed to facilitate the exchange of knowledge, the sharing of experiences, and collaboration across different sectors involved in rare diseases.