The XVII International Conference of ICORD (International Collaboration on Rare Diseases and Orphan Drugs) will take place on 14–16 November 2025 at the Sabancı Cultural Center, Dokuz Eylül University, İzmir, Türkiye. Led by the Organising Committee chaired by Prof Uğur Özbek from the İzmir Biomedicine and Genome Center (IBG), the meeting will convene researchers, healthcare professionals, patient advocates and policymakers to share knowledge and advance collaboration for better diagnosis, treatment and care for people living with a rare disease.
Why this matters for Europe’s rare disease agenda
ICORD is a long‑standing forum for practical exchange across disciplines and borders. Its 2025 programme is expected to spotlight advances in clinical research readiness, data‑driven discovery, and access to therapies—topics that align closely with ERDERA’s mission to accelerate patient‑centred research and innovation across Europe. By connecting international partners with European Reference Networks, academia, SMEs and industry, the conference supports earlier and more accurate diagnosis, better trial design, and faster translation of research into real‑world benefits.