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Factsheet – How the European Commission works on Rare Diseases and the European Reference Networks (ERNs)

Factsheet – How the European Commission works on Rare Diseases and the European Reference Networks (ERNs)

Overview of the European Commission’s coordinated approach to rare diseases, including policy, research, and the role of European Reference Networks.
Factsheet - EU delivering on rare diseases for patients and families

Factsheet – EU delivering on rare diseases for patients and families

Overview of how the European Union supports patients with rare diseases through coordinated policy, research, and healthcare collaboration.
CRN Conference Group Photo

Clinical experts and patient advocates gather in Heidelberg to turn discussion into action on global rare disease research

From shared standards to local impact, the 2nd Clinical Research Networks Conference agreed concrete next steps for interoperable clinical research networks worldwide
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One month to go: register now for the 2nd International Conference on Clinical Research Networks

9-10 December, Heidelberg and online — last places for in person attendance; free livestream for registered participants.
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Shaping the future of global rare disease research: Join the 2nd International Conference on Clinical Research Networks

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